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Conference Materials
The Caring for Carcinoid Foundation is dedicated to empowering patients and equipping them with a comprehensive understanding of treatment options so that patients can make the best informed decision when deciding their care. In the spirit of empowering patients, CFCF is pleased to bring together our extensive community of patients, loved ones, medical professionals, and supporters at Patient Education Conferences throughout the United States.
On this page you will find valuable resources from CFCF Patient Education Conferences including expert slide presentations, papers, and videos.
Check out the Educational Events page to learn about upcoming educational events.
Los Angeles Patient Education Seminar - 2012
Date:
Sat, 03/17/2012 - 12:30pm
Location:
Hotel Intercontinental - Los Angeles Century City
Presenters and Topics:
- Joseph Pisegna, MD, Neuroendocrine Tumor Primer and New Diagnostics for 2012
- Edward Wolin, MD, New Therapies for Neuroendocrine Tumor Patients: Approved and In Development
- Nicholas Nissen, MD, Liver Surgery Including Transplant Options
- Marc Friedman, MD, Hepatic Artery Embolization
- Carlos Anaya, MD, Ablative Techniques for Neuroendocrine Tumor Metastasis
- Jodi Newson, MS, RD, CSO, Living Well With Neuroendocrine Cancer
- Arash Asher, MD, Managing Stress: The Mind-Body Connection
- Ron Hollander, Importance of Research
Worldwide NET Cancer Awareness Day Patient Education Event
Date:
Fri, 11/11/2011 - 8:00am
Location:
The University of Texas MD Anderson Cancer Center Presenters and Topics:
- James Yao, MD, Overview of Neuroendocrine Tumors
- Jason Fleming, MD, Surgical Management of Neuroendocrine Tumors of the GI Tract and Pancreas
- Thomas Aloia, MD, Resections and Liver Transplants for Neuroendocrine Tumor Patients
- James Yao, MD, New Treatments for Advanced Pancreatic Neuroendocrine Tumors
- Alexandria Phan, MD, New Treatments for Advanced Carcinoid
- Ebrahim Delpassand, MD, PRRT in Neuroendocrine Cancer Therapy : Current Status in U.S.
- Ravi Murthy, MD, Role of Embolizations in Treating Neuroendocrine Tumor Liver Metastases - Bland, Chemo, and Radioembolization
- April Boyd, RN, Octreotide Injections
- Lauren Erb, Looking to the Future: The Power of Research
Focus on Neuroendocrine Tumors: Patient and Caregiver Conference - 2011
Date:
Fri, 09/16/2011 - 7:00am
Location:
Philadelphia Hilton Presenters and Topics:
- David Metz, M.D., Overview of Neuroendocrine Tumors
- Rodolfo Perini, M.D., Functional Imaging
- Vinay Chandrasekhara, M.D., Endoscopic Imaging
- Antonia Sepulveda, M.D., Ph.D., Tumor Markers and Pathology
- Katherine Nathanson, M.D., Genetic Syndromes
- Giorgos Karakousis, M.D., Surgical Management of GI Neuroendocrine Tumors
- Stacey Su, M.D., Surgical Management of Bronchial Carcinoids
- Abraham Shaked, M.D., Ph. D., Liver Resections and Liver Transplants for Neuroendocrine Tumors
- Weijing Sun, M.D., Systemic Treatment Options for Pancreatic Neuroendocrine Tumors
- Andrea Cercek, M.D., Systemic Treatment Options for Gastrointestinal Carcinoid Tumors
- Michael Soulen, M.D., Liver-Directed Therapies for Neuroendocrine Tumors
- Rodolfo Perini, M.D., MIBG and PRRT
- Determining the Best Personalized Treatment Approach
- Lauren Erb, Importance of Research
- Barish Edil, M.D., Pancreatic Neuroendocrine Tumor Genome Project
- Xianxin Hua, M.D., Ph.D., New Pathways
- Stephan Hahn, M.D., Proton Therapies for Neuroendocrine Tumors
- Patient Power Panel
- Bonnie Bennett, R.N., Nurse Coordinator Role
- Karen Wagner, M.S., R.D., L.D.N., Nutrition Tips for Neuroendocrine Tumor Patients
- Mark Francis, Ph.D., Support for the Caregiver
Click here to view video and presenters' slides from the event.
Click here to read the transcript of the webchat.
Stanford Neuroendocrine Tumor Patient Education Conference - 2011
Date:
Sat, 09/10/2011 - 10:00am
Location:
Stanford University Alumni Center Presenters and Topics:
- George Fisher, M.D., Ph.D., Neuroendocrine Tumors 101: A Primer
- Jeffrey Norton, M.D., Surgery for Neuroendocrine Tumors: Disease-Specific Issues and Opportunities
- George Poultsides, M.D., Laparoscopic Approaches
- Albert Koong, M.D., Ph.D., The Many Faces of Radiation
- John Louie, M.D., Interventional Oncology
- Greta Macaire, M.A., R.D., C.S.O., Nutrition: What to Eat and Why
- Panel: Tumor Board Case Discussion
- Emily Bergsland, M.D., Carcinoid Syndrome: Complications and Management
- Panel: Hot Topics in Care
- Panel: Psychosocial Aspects of Living With Neuroendocrine Cancer
- Lauren Erb, Looking to the Future: The Power of Research
- George Fisher, M.D., Ph.D., Clinical Trials 101
- Pamela Kunz, M.D., Current Clinical Trials
Please click here to view conference videos.
Los Angeles Clinical Trials Neuroendocrine Tumor Patient Education Seminar
Date:
Sat, 03/19/2011 - 12:30pm
Location:
Thalians Auditorium, Cedars Sinai Medical Center Presenters and Topics:
- Edward Wolin, MD, Neuroendocrine Tumor Basics: What Every Patient Needs to Know and Is a Clinical Trial Right for You? Clinical Trials for Neuroendocrine Tumor Patients
- Ronald Natale, MD, Cancer Clinical Trials
- J. Randolph Hecht, MD, Biology of Neuroendocrine Tumors and Lessons from Other GI Cancers
- Lauren Erb, Understanding CFCF's Clinical Trials Resource and Clinicaltrials.gov
- Patient Panel, Sharing Personal Experiences and Lessons Learned
- Physician Panel, Enrolling in a Clinical Trial - Important Considerations
Stanford Neuroendocrine Tumor Patient Education Conference
Date:
Sat, 09/25/2010 - 8:30am - 4:30pm
Location:
Stanford University Alumni Center Presenters and Topics:
- George Fisher, M.D., Ph.D., Systemic Treatment Options in Neuroendocrine Tumors; Navigating Your Care; Translational Research
- Laurence Katznelson, M.D., Managing your symptoms: clinical syndromes and the drugs to treat them
- Manuela Kogon, M.D., Dealing with the Emotional Aspects of Cancer
- Pamela Kunz, M.D., Systemic Treatment Options in Neuroendocrine Tumors; CFCF NET Biobank
- Uri Ladabaum, M.D., Deciphering Your Diagnosis: Genetics
- Teri Longacre, M.D., Deciphering Your Diagnosis: Pathology
- Greta Macaire, M.A., R.D., C.S.O., Nutrition Essentials for Neuroendocrine Tumor Patients
- Robert Merritt, M.D., Surgical Management of Bronchial Carcinoids
- Jeffrey Norton, M.D., Surgical Management of Neuroendocrine Tumors in the GI Tract
- Andrew Quon, M.D., Deciphering Your Diagnosis: Imaging
- Daniel Sze, M.D., Liver Directed Therapies for Patients with Liver Metastases
- Randall Vagelos, M.D., Carcinoid Heart Disease
- Brendan Visser, M.D., Liver Resections and Liver Transplants for Neuroendocrine Tumor Patients
Please click here to view videos of the conference.
Houston Neuroendocrine Tumor Patient Education Conference - 2010
Date:
Fri, 04/30/2010 - 8:30am - 5:00pm
Location:
Houston, TX Presenters and Topics:
- Eddie Abdalla, M.D., Resections and Liver Transplants for Neuroendocrine Tumor Patients
- Lowell Anthony, M.D., Role of Radiopeptide Therapy for Neuroendocrine Tumors
- Annette Bisanz, M.P.H., Symptom Management (Part I; Part II)
- April Boyd, R.N., Octreotide Injections
- Jason Fleming, M.D., Surgical Management of Neuroendocrine Tumors, (Part I; Part II)
- Ravi Murthy, M.D., Role of Embolizations in Treating Neuroendocrine Tumors
- Alexandria Phan, M.D., Role of Clinical Trails for Neuroendocrine Tumors
- James Yao, M.D., Overview of Neuroendocrine Tumors; Role of Clinical Trails for Neuroendocrine Tumors; Development of Neuroendocrine Tumor Biobank
Los Angeles Patient Education Seminar
Date:
Sat, 03/27/2010 - 12:30pm
Location:
Cedars-Sinai, Los Angeles, CA Presenters and Topics:
- Edward Wolin, M.D., Latest Treatment Options for Carcinoid and Neuroendocrine Tumor Patients
- Run Yu, M.D., Ph.D., Pheochromocytoma
- Farin Amersi, M.D., F.A.C.S., Case Discussion
- Marc Friedman, M.D., Radioembolization: What You Need to Know
- Stephen Colquhoun, M.D., F.A.C.S, Surgical Management of Carcinoid and Related Neuroendocrine Tumor Patients
- Simon Lo, M.D., Case Discussion
- Nicholas Nissen, M.D., , Case Discussion
- Fe San Angel, R.N., O.N.C., Tips for Neuroendocrine Tumor Patients: Navigating Your Care
- Jodi Newson, M.S., R.D., C.S.O., Living Well with Carcinoid
- Giovanna Imbesi & Vida Vierra, Music and Guided Meditation
Boston Ask the Experts Patient Seminar
Date:
Sat, 09/12/2009 - 8:30am - 4:30pm
Location:
Boston, MA Presenters and Topics:
- Katie Binda, M.S.W., L.I.C.S.W., Coping with Cancer
- Craig Blinderman, M.D., Pain Management for the Neuroendocrine Tumor Patient
- Jennifer Chan, M.D., M.P.H., Progress in the Systemic Therapy of Neuroendocrine Tumors
- Michael Choi, M.D., Current and Prospective Neuroendocrine Tumor Research
- Daniel Chung, M.D., Development of a Neuroendocrine Tumor Biobank
- Jeffrey Clark, M.D., Case Study and the Importance of Clinical Trials
- Cristina Ferrone, M.D., Surgical Management of Neuroendocrine Tumors
- Ruth Gerdes, Taking Control of Your Care
- Carrie Host, A Reading from "Between Me and the River"
- Matthew Kulke, M.D., Development of a Neuroendocrine Tumor Biobank
- Andrew Leiter, M.D., Ph.D., Development of a Mouse Model for Carcinoid Tumors
- Matthew Meyerson, M.D., Ph.D., Genomic Analysis of Neuroendocrine Tumors
- Ramesh Shivdasani, M.D., Ph.D., Neuroendocrine Tumors: Lessons from Developmental Biology
- Robin Sommers, R.N., Symptom Management in Carcinoid Patients
- Keith Stuart, M.D., Role of Liver Directed Therapies for Patients with Liver Metastates
For video presentations, please visit the "Boston Ask the Experts Seminar" section of our Video Gallery.
Los Angeles Patient Education Seminar
Date:
Sun, 03/29/2009 - 8:00am - 4:30pm
Location:
Cedars-Sinai Medical Center Presenters and Topics:
- Carrie Host, Experience as a metastatic carcinoid patient
- Rachel Beller, R.D., Eating Essentials for Neuroendocrine Tumor Patients
- Edward Wolin, M.D., Latest Treatment Options in Carcinoid Cancer
- Jean Botha, M.D., Greg Fitzke, M.D., Michael Zaruba, M.D., Surgery: When, where, and how
- Nirmala Hidalgo, M.D., Preserving Quality of Life while Minimizing Pain
- George Fisher, M.D., Ph.D., Pamela Kunz, M.D., Latest Treatment Options in Pancreatic Neuroendocrine Tumors
- Matthew Meyerson, M.D., Ph.D., Large-Scale Genome Study of Carcinoid
- Joseph Pisenga, M.D., The Latest in Diagnostic Tools and Biomolecular Markers
- Jodi Newson, M.S., R.D., C.S.O., Nutrition: the Good, the Bad, and the Necessary
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